Working with our son’s hypersensitivities to corn and corn derivatives has not been easy. Luckily with the help of our Environmental Allergist it has become managable.
We drove the 5 hours down from New York to Towson, Maryland to see our specialist Dr. Richard E. Layton MD. Working along side a doctor and his staff who really understand what your child is suffering from makes life much easier.
While there we don’t feel crazy, we feel validated. Our doctor has the tools to create a controlled reaction to corn causing our son to change behavior, writing ability, concentration, impulse controls etc. Due to having a direct cause and effect it makes the reactions more clear to us.
We have noticed lately we are missing the little tell tale signs of a reaction beginning, when we would normally give our son his “drops” which are a holistic way to turn off a reaction. The proper name is Sublingual Immunotherapy. Or we like to say, drops for under the tongue. 
Being a parent of a child who sufferes neurological changes during an airborne exposure to corn and corn derivatives it is very frustrating to explain to other people. Other people are most likely to judge our parenting skills, our choices and our explanations. If we catch our son’s allergy attack prior to it getting really into his system we are able to turn it off with his sublingual immunotherapy drops.
During our visit we were checking to see if our dilution was still appropriate for his sensitivity level. After the first “challenge” dose under his tongue he complained of stinging sensations. After about 15 minutes he couldn’t write our phone number with the numbers facing the correct way. 2′s and 4′s were backward. Immediately upon seeing this reaction we adjusted his medication in hopes to reverse the affects in turn finding the correct neutralizing dose.
This second “challenge” still created a stinging sensation under his tongue but it wasn’t as bad he said. At this point he was becoming very irritable, no longer cooperating with writing and following simple directions. I asked Dr. Layton to please tell me if he thought our son was irritated with me asking him to do things over and over or if he was still reactive.
Dr. Layton entered the quiet exam room where we were and asked him a few questions. Our son wouldn’t look up, wouldn’t focus on the questions and couldn’t be bothered to answer them. This is not his personality, he loves to converse. The lack of eye contact and inappropriate answers to questions meant we were still in a reactive state.
Third dose was a bit better, we got him to focus, write tiny words, phone number, random numbers and all were correct. His irritation level was gone, even though this was going on our 3rd hour of adjusting and readjusting his medications.
So we thought we were done, we found the magic number and were ready to leave. Until….. he couldn’t sit still. His brain was working fine but his adrenaline was coursing through his veins. Even at “rest” in a chair he was wiggling, kicking his feet, moving his torso, shifting his weight, incessantly talking. When asked to walk over to us he was bouncing, like Tigger. He has started a new response to his allergy by sucking the mucus out of the back of his throat by making a change in pressure in his sinuses. It creates a noise like a grinding/clucking. It’s very hard to explain but it is deep with in his head. We noticed this had increased also.
Eventually a lower dose of immunotherapy was given to him. This time he was able to hold eye contact during questions, answers and converstation. His irritability was gone, and he was no longer in constant motion.
At the end of the day we drove 5 hours, spent 4 hours at the doctors office and were now headed to the hotel to relax. Our poor son was whipped. His body was put through its paces and we had our confirmation again that he is not in control of his actions as much as inhaling his allergen is in control of his actions.
It is very overwhelming to have a child that can Jekyll and Hyde very quickly, but, to go to a doctors office who sees this reaction all the time makes us all feel better. I leave not feeling crazy insane over supposidly “excusing” his odd behaviors as being a reaction to corn. It is real, it is being dealt with and we all need work in understanding the causes of these extreme shifts in our children that can make sense instead of being completely confusing.
He still has to be kept in as safe an environment as possible, but we know for sure we have the correct dose to make him as comfortable as we can as we try to move around our world with out causing harm.
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few q’s… how many time does Jacob get tested? What about Brandly? Also what’s the difference betw Sublingual Immunotherapy and bennadryl (compounded)? Did you ever given them bennadryl when they had allergic reaction? I’ll probably have more q’s later on.
sublingual immunotherapy is nothing like benedryl. Benedryl reacts with hystamine blockers. A neurological reaction (to the best of my knowledge, remember I am not a doctor) is not due to hystamines. The T-Cells in their bodies are fighting the allergen. At a certain level of dilution the body is able to recognize the allergen and not fight it. Jacob’s level is almost the highest dilution of corn for his body to stop revolting against it. When you go to an Environmental Allergist they will be able to tell you more scientific things about it. What I know is he doesn’t have a runny nose, watery eyes, sneezing etc. which hystamines cause which is why you take an anti-hystamine to stop it.
Bradley was tested at around 1 year old. He was allergic to corn, milk, eggs and apples. I had all ready figured it out due to breast feeding him and knowing all ready what allergies can do to infants. This was just confirmation. A board certified allergist did his testing, bloodwork etc. and told me Bradley was not allergic to anything and he could go right ahead and eat what he wanted. I didn’t really see how that was possible if he was getting sick from minute amounts in my milk.
After our visit to Dr. Layton, my suspicians were confirmed. He gave us sublingual immunotherapy at Bradley’s end point after testing with needles told us how sensitive he was. Later in the week we gave him 1/4 of a tsp of cooked egg yolk. With in 5 minutes he had dairrhea down his legs out of his diaper. This was the child that I was told by a Board Certified Allergist was fine, no allergies, feed him what ever he wants. We administered the immunotherapy mix and his stomach relaxed and we knew NO EGGS for sure.
Due to this finding so young and the elimination being complete from all of his allergies he has since (luckily) outgrown everything, EVERYTHING. He can eat anything BUT red dye. That makes him kooky.
Oh, last thing, Jacob used to get tested every 6 months, then once a year, then we tried LDA shots that everyone I know, including myself have great success with. Unfortunately it makes NO difference for Jacob. During the time of the LDA shots we were traveling the 5 hours to Baltimore every 2 months. It was costly, traumatic to get the shot, and time consuming. We of course will do anything to help him and this was an option to try. We don’t know why he didn’t respond to this treatment. We went every 2 months for 2 years.
Then we (Dr. Layton, Joe (my husband) and I ) sat down and discussed the pro’s and con’s of the situation. At that point a year ago we all decided to stop putting Jacob through this routine for a while, see how his body does on it’s own. It is now a little over a year and our first check up. His numbers still haven’t changed, so the shots weren’t making a difference and the lack of shots weren’t making a difference.
As I said though, everyone else I know, even people who suffer as badly as Jacob does, have recently started getting the LDA injections and say they never felt better, it’s worth a try. We don’t know why Jacob is not getting any better.
I can’t wait to take my kids in for a wellness visit. Just want to talk to their pedia doc and see if she can find env allergist for us. Really hope this doc will work with us and help us out. Thanks for sharing your story.
I can tell you that Conventional Doctors will tell you this child is ADHD and prescribes him meds that mask the real solution. So glad you found me, Nicole. I have a feeling it is a beginning for us as well. Camden is turning a year old a few weeks. He will start eating more food soon. He wants to as well. And I have yet found a doctor who understands what we are going through.
Nice that I can’t edit the REPLY…. GO TO http://WWW.CORNFREEDOM.COM WELCOME page, on the right hand side click the link that says “About our Family” that’s where the story of figuring out the behavior changes was an allergic reaction.
So glad you have this Dr. to work with you and he understands and helps….and most importantly, you don’t feel crazy…as so many of us can relate to. Was wondering if it makes a difference if the corn is non-gmo (organic) or otherwise, as all corn is basically genetically modified now. Also, do you have problems staying at a hotel with your son…do you take any special precautions to avoid cleaning agents they use that have corn in them, etc. Realizing, you never want him to ingest corn….wondering if he has the same reaction to other types of corn, like blue corn as opposed to regular. Also, does he have any other allergies other than corn? It’s an amazing story and journey (who else would have figured out his neurological reactions???) Wonder what conventional medical dr’s would think of his reactions, etc. You need to write a book (eventually) and share your experience and your story. I think you’re doing a great job with it all
I am going to try to answer all your questions. Hotels are not a good place for him to be, but we were all so tired we knew we wouldn’t safely make it home the 5 hour drive.
We planned the hotel stay AFTER the doctor visit so we could make sure we had his medications all set to be able to take care of anything needed to. Since it is NOT anaphylactic we just need to watch his behavior and give him the immunotherapy and if we do it early enough during the initial reactions we can stave off any drama.
BLUE CORN…. YELLOW NON GMO… ???? We don’t know and no one wants to find out. We have asked but have not gotten brave enough to try. He reacts to breathing corn in, we don’t know what he is actually reacting to.
Next, is he allergic to anything else? NO, but that answer always makes me giggle. He is allergic to nothing but corn, but corn is everything. That should be the title of my book.
Our son was very young when I was told that his behavioral switches could be allergy related. Thanks to a dear friend who wasn’t afraid to challenge my mommy’ness. Most people don’t suggest that your child’s behavior is awkward or something they find irritating. I all ready knew something was not right, but didn’t know where to place my thoughts. She focused me on allergies. He was only 2 years old at the time it took me another 5 months to get his doctor to agree to a referral to an allergist. Then the testing came up for a handful of other allergies including Corn, which was the lowest level and not a concern to the doctor.
You can read all about this information on http://www.cornfreedom.com/welcome to the right of the page is “About Our Family” I tell the whole story from beginning to present time (close to present) This blog is of course the most present information.
Conventional Doctors, our other Medical Professionals. CHOOSE WISELY… always ask your questions, tell them what you suffer and discuss their feelings about that subject. If they are not receptive to learning about your issues, then, say thank you and good bye.
We have been to many doctors who want to peg the behavioral changes on ADHD, Autism Spectrum, ADD, rambuncious child, over active the list goes on and on with SYMPTOMS as I like to call them. All of his SYMPTOMS from his corn allergy (others may have wheat, diary, egg, soy, artificial colors and flavorings etc etc they can cause the same issues) are not considered symptoms but instead a title.
As of right now we have these types of doctors that are medically trained full MD PHD’s; Neurologist, Neuro-psychologist, General Practioner, Pediatrician, Board Certified Allergist and our Environmental Allergist, all of whom have written official letters after examining our son about the changes that they have come across before and after an exposure to corn or corn derivative. OPEN MINDS are hard to find. Doctors are people too, how many people take you seriously? It is hard work, but they are out there, you just need to perservere and ask many questions and be ready to walk out and call another doctor.