Working with our son’s hypersensitivities to corn and corn derivatives has not been easy. Luckily with the help of our Environmental Allergist it has become managable.
We drove the 5 hours down from New York to Towson, Maryland to see our specialist Dr. Richard E. Layton MD. Working along side a doctor and his staff who really understand what your child is suffering from makes life much easier.
While there we don’t feel crazy, we feel validated. Our doctor has the tools to create a controlled reaction to corn causing our son to change behavior, writing ability, concentration, impulse controls etc. Due to having a direct cause and effect it makes the reactions more clear to us.
We have noticed lately we are missing the little tell tale signs of a reaction beginning, when we would normally give our son his “drops” which are a holistic way to turn off a reaction. The proper name is Sublingual Immunotherapy. Or we like to say, drops for under the tongue.
Being a parent of a child who sufferes neurological changes during an airborne exposure to corn and corn derivatives it is very frustrating to explain to other people. Other people are most likely to judge our parenting skills, our choices and our explanations. If we catch our son’s allergy attack prior to it getting really into his system we are able to turn it off with his sublingual immunotherapy drops.
During our visit we were checking to see if our dilution was still appropriate for his sensitivity level. After the first “challenge” dose under his tongue he complained of stinging sensations. After about 15 minutes he couldn’t write our phone number with the numbers facing the correct way. 2′s and 4′s were backward. Immediately upon seeing this reaction we adjusted his medication in hopes to reverse the affects in turn finding the correct neutralizing dose.
This second “challenge” still created a stinging sensation under his tongue but it wasn’t as bad he said. At this point he was becoming very irritable, no longer cooperating with writing and following simple directions. I asked Dr. Layton to please tell me if he thought our son was irritated with me asking him to do things over and over or if he was still reactive.
Dr. Layton entered the quiet exam room where we were and asked him a few questions. Our son wouldn’t look up, wouldn’t focus on the questions and couldn’t be bothered to answer them. This is not his personality, he loves to converse. The lack of eye contact and inappropriate answers to questions meant we were still in a reactive state.
Third dose was a bit better, we got him to focus, write tiny words, phone number, random numbers and all were correct. His irritation level was gone, even though this was going on our 3rd hour of adjusting and readjusting his medications.
So we thought we were done, we found the magic number and were ready to leave. Until….. he couldn’t sit still. His brain was working fine but his adrenaline was coursing through his veins. Even at “rest” in a chair he was wiggling, kicking his feet, moving his torso, shifting his weight, incessantly talking. When asked to walk over to us he was bouncing, like Tigger. He has started a new response to his allergy by sucking the mucus out of the back of his throat by making a change in pressure in his sinuses. It creates a noise like a grinding/clucking. It’s very hard to explain but it is deep with in his head. We noticed this had increased also.
Eventually a lower dose of immunotherapy was given to him. This time he was able to hold eye contact during questions, answers and converstation. His irritability was gone, and he was no longer in constant motion.
At the end of the day we drove 5 hours, spent 4 hours at the doctors office and were now headed to the hotel to relax. Our poor son was whipped. His body was put through its paces and we had our confirmation again that he is not in control of his actions as much as inhaling his allergen is in control of his actions.
It is very overwhelming to have a child that can Jekyll and Hyde very quickly, but, to go to a doctors office who sees this reaction all the time makes us all feel better. I leave not feeling crazy insane over supposidly “excusing” his odd behaviors as being a reaction to corn. It is real, it is being dealt with and we all need work in understanding the causes of these extreme shifts in our children that can make sense instead of being completely confusing.
He still has to be kept in as safe an environment as possible, but we know for sure we have the correct dose to make him as comfortable as we can as we try to move around our world with out causing harm.